Five-month-old innocent little girl Tira Kamat is fighting a life and death in a hospital in Mumbai, but her parents are struggling hard to save her life. In fact, Tira has SMA-type 1 disease and requires an injection of 22 crores worth of Zolgensma for treatment. The doctor says that due to this disease, the child's life can be saved only for 18 months if not injected, that is why the injection from the US is very important for the baby.
The child's family raised money in this way
The child's family has raised around Rs 16 crore. For this, the child's father created a page on social media and started crowdfunding on it. It received a good response here and has collected around 16 crores till now. Now the family hopes that the injection will come to the hospital soon. At the same time, about 6 crore rupees tax has to be paid separately, but on the letter of former Maharashtra Chief Minister Devendra Fadnavis, PM Narendra Modi has waived the tax.
How dangerous is this disease?
The gene responsible for spinal muscular atrophy disease disrupts the production of proteins necessary for the smooth functioning of the nervous system in the body, resulting in nervous system damage and the death of infants. Actually, it is a rare muscle disorder. When this disease becomes severe, children die before they are two years old.
Tira felt suffocated even after drinking milk
Tira's father Mihir says that Tira was born in the hospital. When she came home, everything was fine, but soon the symptoms of the disease started appearing in her. Teera suffocated while drinking mother's milk and she used to get restless. There was a lack of water in the body. Once, his breath stopped for a few seconds.
What are the symptoms of this disease?
Children who suffer from spinal muscular atrophy type-1 have weak muscles, lack of water in the body and have difficulty in breastfeeding and breathing. The muscles of children suffering from this disease become so weak that they do not even move.
Children who have symptoms of spinal muscular atrophy are gradually so incapacitated that they need a ventilator to breathe. However, children cannot be put on ventilators for long periods of time, as there is a risk of infection in the tube.